The tiny every day miracles

Life has been happening all around us. It is strange, yet comforting to go about every day business as if nothing is happening.

Brian is doing remarkably well. He is maneuvering the stairs and house. He is quiet, but conversational if he feels he can or wants to contribute. He is involved. He is attending the boys soccer games. He is playing cards. He is in good spirits. He feels relatively well. He has vomited a couple of times in the last week, but nothing terrible, and no all-day episodes like in the past.



Hospice will be calling on us once per week for now for Brian's care. I have a lot of resources for the kids and understanding this process. However, though, the overall mood of the house right now is uplifting and joyful. The visitors that Brian has had are not here saying goodbye, but rather living life adjacent to Brian for a little while longer. Saying goodbye can be awkward. It is difficult to say how long Brian will continue to do this well, so we don't guess. I didn't expect him to be doing as well as he is right now. He is doing better than he was even 3 weeks ago. That in and of itself is a small miracle.



This past weekend our visitors included my family - my sister and brother and their families and my parents. It was very fun and Brian did great. The layout of the house worked well to accommodate all 15 of us. We missed my nephew, Andrew, who is in college, though. My brother and Heather were supposed to come without the kids since the kids have so many sports obligations, but all of them ended up coming on Thursday. You see, they live in Paducah, KY which has hard hit by the latest ice storm. The kids' school and all events were cancelled since they are STILL without power. Our house was like an oasis for them with phone service, Internet access, TV, a warm fire and power. As terrible as the ice storm is for their area, I feel blessed that God granted us all time together without the nagging of other missed events. Small miracles.



Brian's little brother, Michael and Jen had their first baby - McKenna Riley on Wednesday, January 28. McKenna Riley is the newest cousin to 5 male grandsons and the newest niece to 2 uncles. In case you didn't read into that, she is the first female born into Jan and Ed's (Brian's parents) lineage. I am so happy to have the celebration of McKenna's birth to commemorate this time rather than Brian's failing health. Twelve years ago, my brother, Kevin and Lisa had their baby girl, Lexie. They were induced just a day after Brian was diagnosed with his brain tumor. They made Brian and me the godparents in order to help us remember a joyful occasion during that time of May instead of the anniversary of Brian's diagnosis. That was very special to us and I always think of how life happens and joy is all around us even in the midst of our struggles. McKenna is another reminder of small everyday miracles.



Speaking of miracles, Brian made it out to the boy's soccer games last week. He attended both Grant and Gavin's games due to the kindness of a few that helped Brian get into the building and others that cleared the walk for him to get in the building without slipping. Grant played a great game as he usually does - hustling and trying his hardest. He was awarded the Gatorade for best defensive player by his coach that day. Daddy was there to see it. The next night, Gavin scored a goal. Any of you who have ever seen Gavin play in the last year know this is TRULY MIRACULOUS! And Daddy was there to see it. Small everyday miracles.



KEEP BELIEVING